{"id":871,"date":"2023-02-19T16:38:12","date_gmt":"2023-02-19T16:38:12","guid":{"rendered":"https:\/\/raddial.be\/page-daccueil\/"},"modified":"2025-09-15T07:17:47","modified_gmt":"2025-09-15T07:17:47","slug":"page-daccueil","status":"publish","type":"page","link":"https:\/\/raddial.be\/fr\/","title":{"rendered":"Page d&rsquo;accueil"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"871\" class=\"elementor elementor-871 elementor-7\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-56f0743 elementor-section-height-min-height elementor-section-boxed elementor-section-height-default elementor-section-items-middle\" data-id=\"56f0743\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-eac793a\" data-id=\"eac793a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-7cf8bd7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7cf8bd7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-e2211b8\" data-id=\"e2211b8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-70f171d elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"70f171d\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100,&quot;motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.22.0 - 26-06-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">RADDIAL<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-9fd7eb7 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"9fd7eb7\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.22.0 - 26-06-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>RARE DISEASE DIAGNOSIS ALLIANCE<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a7e4945 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"a7e4945\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100,&quot;motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Comment acc\u00e9l\u00e9rer le processus de diagnostic pour les personnes atteintes de maladies rares ?<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-72e7b4c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"72e7b4c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-aad60e8\" data-id=\"aad60e8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-dde62aa elementor-widget__width-auto elementor-widget-tablet__width-inherit comma-number elementor-invisible elementor-widget elementor-widget-counter\" data-id=\"dde62aa\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"counter.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.22.0 - 26-06-2024 *\/\n.elementor-counter{display:flex;justify-content:center;align-items:stretch;flex-direction:column-reverse}.elementor-counter .elementor-counter-number{flex-grow:var(--counter-number-grow,0)}.elementor-counter .elementor-counter-number-wrapper{flex:1;display:flex;font-size:69px;font-weight:600;line-height:1;text-align:center}.elementor-counter .elementor-counter-number-prefix{text-align:end;flex-grow:var(--counter-prefix-grow,1);white-space:pre-wrap}.elementor-counter .elementor-counter-number-suffix{text-align:start;flex-grow:var(--counter-suffix-grow,1);white-space:pre-wrap}.elementor-counter .elementor-counter-title{flex:1;display:flex;justify-content:center;align-items:center;margin:0;padding:0;font-size:19px;font-weight:400;line-height:2.5}<\/style>\t\t<div class=\"elementor-counter\">\n\t\t\t\t\t\t<div class=\"elementor-counter-number-wrapper\">\n\t\t\t\t<span class=\"elementor-counter-number-prefix\"><\/span>\n\t\t\t\t<span class=\"elementor-counter-number\" data-duration=\"2000\" data-to-value=\"4.9\" data-from-value=\"0\" data-delimiter=\".\">0<\/span>\n\t\t\t\t<span class=\"elementor-counter-number-suffix\"><\/span>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9c6c228 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"9c6c228\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>ans<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f739b84 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"f739b84\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>c&rsquo;est le temps n\u00e9cessaire en moyenne pour les patients atteints de maladies rares pour obtenir un diagnostic correct. Il faut aller plus vite !<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-8f6e1e5\" data-id=\"8f6e1e5\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-26799cc elementor-widget__width-auto elementor-widget-tablet__width-inherit elementor-invisible elementor-widget elementor-widget-counter\" data-id=\"26799cc\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"counter.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-counter\">\n\t\t\t\t\t\t<div class=\"elementor-counter-number-wrapper\">\n\t\t\t\t<span class=\"elementor-counter-number-prefix\"><\/span>\n\t\t\t\t<span class=\"elementor-counter-number\" data-duration=\"2000\" data-to-value=\"10\" data-from-value=\"0\" data-delimiter=\".\">0<\/span>\n\t\t\t\t<span class=\"elementor-counter-number-suffix\"><\/span>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7fa4fb7 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"7fa4fb7\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>ans<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16c8697 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"16c8697\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>le dernier plan belge pour les maladies rares a 10 ans d\u00e9j\u00e0\u00a0! Depuis, la science a franchi de nouvelles \u00e9tapes importantes. Les patients m\u00e9ritent mieux !<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-f098c48\" data-id=\"f098c48\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6298ff1 elementor-widget__width-auto elementor-widget-tablet__width-inherit elementor-invisible elementor-widget elementor-widget-counter\" data-id=\"6298ff1\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"counter.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-counter\">\n\t\t\t\t\t\t<div class=\"elementor-counter-number-wrapper\">\n\t\t\t\t<span class=\"elementor-counter-number-prefix\"><\/span>\n\t\t\t\t<span class=\"elementor-counter-number\" data-duration=\"2000\" data-to-value=\"500000\" data-from-value=\"0\" data-delimiter=\".\">0<\/span>\n\t\t\t\t<span class=\"elementor-counter-number-suffix\"><\/span>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e8669d5 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"e8669d5\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Belges<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9bda6e1 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"9bda6e1\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>De nombreux Belges souffrent d&rsquo;une maladie rare. Pour eux, un diagnostic plus rapide va \u00e9galement de pair avec un d\u00e9but plus rapide d&rsquo;un meilleur traitement, ce qui peut am\u00e9liorer consid\u00e9rablement la qualit\u00e9 de vie et l&rsquo;esp\u00e9rance de vie.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-558ab06 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"558ab06\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-bae5cdf\" data-id=\"bae5cdf\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3a427ff elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"3a427ff\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>La Rare Disease Diagnosis Alliance (L&rsquo;Alliance pour le diagnostic des maladies rares\u00a0; RADDIAL) &#8211; une collaboration entre les soci\u00e9t\u00e9s pharmaceutiques Takeda, Sanofi, Johnson &amp; Johnson Innovative Medicine, Chiesi et Alnylam &#8211; souhaite am\u00e9liorer la situation des patients. Gr\u00e2ce \u00e0 une concertation soutenue avec diverses parties prenantes, elle a d\u00e9fini des mesures concr\u00e8tes, efficaces et r\u00e9alistes permettant d&rsquo;acc\u00e9l\u00e9rer le processus de diagnostic pour les patients atteints de maladies rares.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6b53580 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"6b53580\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>* : Eurordis, \u00ab Rare Barometer Survey \u00bb, 2022<br \/>\n** : \u00ab Plan belge pour les maladies rares \u00bb, d\u00e9cembre 2013<br \/>\n*** : RaDiOrg, \u00ab Les maladies rares ne sont pas si rares que \u00e7a ! \u00bb, 22 f\u00e9vrier 2023<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-a9dfcf6 elementor-hidden-mobile elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a9dfcf6\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-f1e6c15\" data-id=\"f1e6c15\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-76aa839 e-transform elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"76aa839\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:100,&quot;_transform_rotateZ_effect&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_rotateZ_effect_tablet&quot;:{&quot;unit&quot;:&quot;deg&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_rotateZ_effect_mobile&quot;:{&quot;unit&quot;:&quot;deg&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>scroll down<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b0f39ce elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b0f39ce\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-053eaa6\" data-id=\"053eaa6\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f3b5dac elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"f3b5dac\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>12 points d&rsquo;action<br \/>\npour un diagnostic plus rapide<br \/>\ndes maladies rares.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-be205ab elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"be205ab\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-27a3078\" data-id=\"27a3078\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0eed9f5 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"0eed9f5\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Ces points d&rsquo;action sont le r\u00e9sultat d&rsquo;une vaste concertation avec des experts \u00e0 l\u2019initiative de la Rare Disease Diagnosis Alliance (RADDIAL). <br \/><br \/>Entre septembre et d\u00e9cembre 2022, RADDIAL a r\u00e9uni des repr\u00e9sentants de patients, des experts universitaires, des m\u00e9decins, des prestataires de soins de sant\u00e9 et des organismes d\u2019assurance-maladie pour un dialogue autour de la question suivante : comment pouvons-nous concr\u00e8tement acc\u00e9l\u00e9rer le diagnostic des maladies rares ?<br \/><br \/><\/p><p>\u00a0<\/p><p>Ces 12 points d&rsquo;action, formul\u00e9s sous forme de recommandations politiques adress\u00e9es aux autorit\u00e9s f\u00e9d\u00e9rales et r\u00e9gionales pour acc\u00e9l\u00e9rer le processus de diagnostic des maladies rares en Belgique, ont \u00e9t\u00e9 pr\u00e9sent\u00e9s lors d&rsquo;un \u00e9v\u00e9nement politique le 29 juin 2023 \u00e0 la Chambre des repr\u00e9sentants.<br \/><br \/><\/p><p>Le m\u00e9morandum a d\u00e9j\u00e0 \u00e9t\u00e9 sign\u00e9 par :<\/p><p><span style=\"font-weight: bolder;\">\u00a0<\/span><\/p><p><span style=\"font-weight: bolder;\">Prof. dr. Vincent Bours<\/span>, Centre Hospitalier Universitaire de Li\u00e8ge<\/p><p><span style=\"font-weight: bolder;\">Prof. dr. Giovanni Briganti<\/span>, Universit\u00e9 de Mons<\/p><p><span style=\"font-weight: bolder;\">Mme Lut De Baere<\/span>, Belgische Organisatie voor Kinderen en volwassenen met een Stofwisselingsziekte<\/p><p><span style=\"font-weight: bolder;\">Prof. dr. Marion Delcroix<\/span>, Universitair Ziekenhuis Leuven<\/p><p><span style=\"font-weight: bolder;\">M. Marc Dooms<\/span>, Universitair Ziekenhuis Leuven<\/p><p><span style=\"font-weight: bolder;\">Prof. dr. Fran\u00e7ois Eyskens<\/span>, Universitair Ziekenhuis Antwerpen<\/p><p><span style=\"font-weight: bolder;\">Mr. Jean-Marie Huet<\/span>, Association Belge contre les Maladies neuro-Musculaires<\/p><p><span style=\"font-weight: bolder;\">Mme Rebecca Jones<\/span>, Universit\u00e9 catholique de Louvain<\/p><p><span style=\"font-weight: bolder;\">Dr. Quentin Mary<\/span>, Soci\u00e9t\u00e9 Scientifique de M\u00e9decine G\u00e9n\u00e9rale<\/p><p><span style=\"font-weight: bolder;\">Dr. Stefan Teughels<\/span>, Domus Medica<\/p><p><span style=\"font-weight: bolder;\">Dr. Christiaan Van Haecht<\/span>, Christelijke Mutualiteiten<\/p><p><span style=\"font-weight: bolder;\">Prof. Em. Ren\u00e9 Westhovens<\/span>, KU Leuven<br \/><br \/><b>Vous pouvez t\u00e9l\u00e9charger le m\u00e9morandum ci-dessous.<\/b><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t<div class=\"elementor-element elementor-element-47d6f20 e-con-full e-flex e-con e-parent\" data-id=\"47d6f20\" data-element_type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3cac3b6 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"3cac3b6\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<h5>T\u00e9l\u00e9chargez le m\u00e9morandum ici<\/h5>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-56f5af7 e-flex e-con-boxed e-con e-child\" data-id=\"56f5af7\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-64e7657 e-con-full e-flex e-con e-child\" data-id=\"64e7657\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-254a120 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"254a120\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.22.0 - 26-06-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/raddial.be\/wp-content\/uploads\/2025\/09\/2025-Raddial-memorandum-NE-1.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/raddial.be\/wp-content\/uploads\/elementor\/thumbs\/Middel-6-q3zqdyee8h87nh5l21tej9005ch062ww6ki2r460bk.png\" title=\"Middel 6\" alt=\"Middel 6\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">RADDIAL Memorandum (Nederlands)<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7bce844 e-con-full e-flex e-con e-child\" data-id=\"7bce844\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f1ad73e elementor-invisible elementor-widget elementor-widget-image\" data-id=\"f1ad73e\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/raddial.be\/wp-content\/uploads\/2025\/09\/2025-Raddial-memorandum-FR-1.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/raddial.be\/wp-content\/uploads\/elementor\/thumbs\/Middel-6-q3zqdyee8h87nh5l21tej9005ch062ww6ki2r460bk.png\" title=\"Middel 6\" alt=\"Middel 6\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">RADDIAL M\u00e9morandum (Fran\u00e7ais)<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5157a33 e-con-full e-flex e-con e-child\" data-id=\"5157a33\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ed8bf10 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"ed8bf10\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/raddial.be\/wp-content\/uploads\/2025\/09\/2025-Raddial-memorandum-EN-1.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/raddial.be\/wp-content\/uploads\/elementor\/thumbs\/Middel-6-q3zqdyee8h87nh5l21tej9005ch062ww6ki2r460bk.png\" title=\"Middel 6\" alt=\"Middel 6\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">RADDIAL Memorandum (English)<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7d41922 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7d41922\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1d62abb\" data-id=\"1d62abb\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b4fb36c elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"b4fb36c\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:200}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><br><br><br><br>En novembre 2024, RADDIAL a organis\u00e9 le forum politique <strong>\u00ab Equit\u00e9 dans les soins de sant\u00e9, y compris pour les maladies rares \u00bb<\/strong> en collaboration avec Universitair Ziekenhuis Leuven et l&rsquo;association de patients RaDiOrg asbl. <br><br><\/p>\n<p>Ce forum politique, qui s&rsquo;est d\u00e9roul\u00e9 \u00e0 la Chambre des repr\u00e9sentants, \u00e9tait organis\u00e9 avec le soutien des sept autres fonctions maladies rares des ho\u0302pitaux universitaires belges.<br><br><\/p>\n<p>Le rapport de synth\u00e8se de ce forum politique est disponible sur <strong><a href=\"https:\/\/www.uzleuven.be\/fr\/maladies-rares\/rapport-policy-forum\">cette page web d&rsquo;Universitair Ziekenhuis Leuven<\/a><\/strong>, et une s\u00e9rie de vid\u00e9os sur l&rsquo;\u00e9v\u00e9nement peut \u00eatre visionn\u00e9e sur <strong><a href=\"https:\/\/www.youtube.com\/watch?v=BJwRepybhik&amp;list=PL5f2iQ45vzVezPRsj0juPiKy8MbdPU0YV\">la cha\u00eene YouTube de RaDiOrg<\/a><\/strong>.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>RADDIAL RARE DISEASE DIAGNOSIS ALLIANCE Comment acc\u00e9l\u00e9rer le processus de diagnostic pour les personnes atteintes de maladies rares ? 0 ans c&rsquo;est le temps n\u00e9cessaire en moyenne pour les patients atteints de maladies rares pour obtenir un diagnostic correct. Il faut aller plus vite ! 0 ans le dernier plan belge pour les maladies rares [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-871","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/pages\/871","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/comments?post=871"}],"version-history":[{"count":63,"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/pages\/871\/revisions"}],"predecessor-version":[{"id":1295,"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/pages\/871\/revisions\/1295"}],"wp:attachment":[{"href":"https:\/\/raddial.be\/fr\/wp-json\/wp\/v2\/media?parent=871"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}